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NHS launches data-sharing 'opt-out' tool for patients across England
Latest news, posted 29 May 2018
The NHS has launched a national data opt-out tool so patients in England can decide not to share their confidential information for use in research and planning.Coinciding with the introduction of the EU's General Data Protection Regulation (GDPR), the t…
Survey for Stargardt patients
Latest news, posted 31 May 2018
A charity, which supports people living with genetic conditions, has produced a survey for people with Stargardt disease.
New report says eye health system is failing patients
Latest news, posted 5 June 2018
The Macular Society has welcomed a new report, published today, which says the current eye health system is failing patients on a grand scale.According to the report, published by the All-Party Parliamentary Group (APPG) on Eye Health and Visual Impairme…
New benefit cuts will put unacceptable strain on many VI people
Latest news, posted 21 June 2018
New benefit cuts are set to put an unacceptable strain on many visually impaired people, who already find it hard to meet their material and social needs.A report, launched by Thomas Pocklington Trust at Westminster on Wednesday (20 June), found that sta…
1 in 3 people know someone with macular disease
Latest news, posted 25 June 2018
One in three people know someone with macular disease, according to a survey by the Macular Society.Macular disease affects more people in the UK than Alzheimer’s, yet many people remain unaware of what it is and who is affected.According to the survey o…
Coming up in summer’s Sideview
Latest news, posted 4 July 2018
Science fact or science fiction?
Latest news, posted 5 July 2018
Many false or exaggerated claims are made about treatments for AMD.
'One minute I just thought I'd need glasses, the next I'm going blind'
Latest news, posted 5 July 2018
Sarah was 28 when she first experienced any trouble with her eyesight.
News reader welcomed by Dame Judi Dench
Latest news, posted 12 July 2018
A world-first RSS news reader has been created for people with macular disease, thanks to an academic at Royal Holloway, University of London and has been given the nod by Dame Judi Dench.The brand new Ev News web app has been created to help people with…
Research review suggests diet is linked to AMD
Latest news, posted 17 July 2018
While many research articles have associated diet with the risk of developing age-related macular degeneration (AMD), a recent review has suggested there is evidence in these claims.The analysis of 18 studies, which was published in Clinical & Experiment…