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Online support for early onset macular degeneration
Latest news, posted 8 January 2024
A new support group for people with early onset macular degeneration – a condition many often confuse with early age-related macular degeneration (AMD) – will launch next month.
‘I feel so incredibly lucky to have had the opportunity to work for such a wonderful organisation’
Latest news, posted 12 January 2024
After nearly a decade of dedicated service as chief executive of leading sight loss charity the Macular Society, Cathy Yelf has announced her decision to retire in 2024.
Michael Owen prays for a cure for son's Stargardt
Latest news, posted 23 January 2024
Michael Owen has brought Stargardt into the spotlight again as he talks about his son's diagnosis.
'Do the things that make you feel worthwhile'
Latest news, posted 24 January 2024
The loneliness and isolation associated with sight loss can be detrimental to our mental health, but volunteer Carol is on a mission to emotionally lift and encourage others.
Dedicated group for those supporting people with macular disease launches
Latest news, posted 25 January 2024
A new dedicated support group for caregivers and those supporting people living with macular disease will launch this spring, recognising their often-overlooked needs.
Another new drug offers hope for Stargardt patients
Latest news, posted 29 January 2024
Another drug to potentially treat Stargardt has shown positive results in slowing down the progression of the disease in a recent trial.
'The more that is known about Charles Bonnet syndrome, the better'
Latest news, posted 1 February 2024
Researchers at Royal Holloway University looking into the effectiveness of different techniques to help manage visual hallucinations are calling for more participants to take part in the first study of its kind.
Patients reveal communication gaps in diagnosis
Latest news, posted 5 February 2024
Patients have highlighted noticeable gaps in communication when they are first diagnosed with macular disease, or if they are considered at risk of developing the condition.
'Talking about it is an opportunity to help people understand more about sight loss'
Latest news, posted 29 February 2024
Leah's journey with Best disease started when she was growing up with her brother Finn, who has the condition. But, even though she knew what it was, her own eyesight was not affected.
‘I didn’t appreciate the longer-term emotional impact of this disease’
Latest news, posted 20 March 2024
Jill, a university researcher from County Durham, described how the Macular Society’s Counselling Service gave her the “time and breathing space” to adapt after a diagnosis of an extremely rare form of macular disease.