Latest news
“I used to cry in the shower – there was so much anger”
Posted: Thursday 13 March 2025
Counselling has been a “lifechanging” experience for Trevor, who hit his lowest point when macular disease began to impact both of his eyes.
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Professor Andrew Lotery answers your questions
Posted: Wednesday 5 March 2025
Professor Andrew Lotery discusses the latest approved treatment for wet age-related macular degeneration (AMD), Lytenava and answers your frequently asked questions on treatments and research.
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Gene therapy trial improves sight in blind toddlers
Posted: Tuesday 4 March 2025
Four toddlers born with a severe form of childhood blindness have experienced “life-changing improvements” to their sight after participating in an experimental gene therapy trial.
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“I'm still really scared of losing what sight I have left”
Posted: Friday 28 February 2025
Kate’s first experience of her rare macular condition happened 16 years ago, when she suffered a bleed in her right eye. It left her with peripheral vision only, though a timely injection halted any further sight loss.
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“The Christmas appeal inspired me to carry on fundraising”
Posted: Wednesday 26 February 2025
After playing a key role in the Macular Society’s Christmas appeal in 2024, ten-year-old Archie is stepping up his fundraising efforts as he plans a new challenge to raise vital funds for research.
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“Sharing and processing emotions can be a powerful tool for healing”
Posted: Monday 3 February 2025
Receiving a macular disease can leave you feeling frightened and uncertain about the future as you navigate something you didn’t expect.
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“I wanted to know what I could do to try and help myself”
Posted: Monday 3 February 2025
Claire found herself “alone and lost” as she tried to come to terms with her Stargardt diagnosis, not knowing anybody else with the rare form of sight loss.
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Finding joy after a diagnosis
Posted: Friday 31 January 2025
Losing their sight changed Dawn and Chris’ lives, but it didn’t stop them from finding enjoyment in the every day. In the latest My Macular and Me podcast, they share how new hobbies, support from others, and a positive mindset helped them find joy after their diagnoses.
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"Without speaking a word, my cane tells my story”
Posted: Friday 31 January 2025
For Rita, a simple white stick helped her overcome her embarrassment of losing her sight and helped her communicate her sight loss to others.
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Syfovre FAQs and next steps for dry AMD and geographic atrophy treatment
Posted: Thursday 30 January 2025
The UK’s Medicines and Healthcare products Regulatory Agency (MHRA) decision to reject the first potential treatment for geographic atrophy (GA), or late-stage age-related macular degeneration (AMD) is undoubtedly a disappointing one for those living with the condition. But, what does the decision mean? We answer your questions.
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First treatment for late-stage dry AMD rejected by UK drug regulator
Posted: Wednesday 22 January 2025
The first potential treatment for geographic atrophy (GA) or late stage dry aged-related macular degeneration has been rejected by the Medicines and Healthcare products Regulatory Agency (MHRA).
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How artificial intelligence is transforming eye care
Posted: Thursday 9 January 2025
Artificial intelligence (AI) is already part of our daily lives, but how is it changing healthcare? In a recent webinar hosted by Macular Society partner OcuPlan Dr James Neffendorf, an eye specialist at King’s College Hospital and ophthalmic surgeon Dan Calladine, explored how AI is transforming the way eye care is delivered and how it is improving outcomes for patients.
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