Latest news
Architecture graduate with Stargardt wants to make buildings more inclusive
Posted: Monday 2 December 2024
A recent architecture graduate who is losing her sight to Stargardt disease, says the experience has motivated her to design everyday spaces that are accessible to everyone.
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“Without counselling, I would have been left in the doldrums - I wasn't me anymore”
Posted: Thursday 28 November 2024
From nursery teaching to supporting people with dementia, Caroline had always associated herself as an outgoing and extraverted person - until her sight began to deteriorate.
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"My Mauna Kea challenge was nothing compared to living with sight loss"
Posted: Tuesday 26 November 2024
An avid cyclist has completed a mammoth challenge of cycling the height of the world’s tallest mountain, in memory of his late wife who spent decades living with a rare macular condition.
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Charles Bonnet Syndrome Awareness Day 2024: Your experiences
Posted: Saturday 16 November 2024
Imagine spotting angels perched in trees, an infestation of flies, or even a familiar face from your past appearing in your living room.
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"I see the floating heads of toothless, grinning medieval men"
Posted: Saturday 16 November 2024
Visions of medieval figures with open mouths and toothless grins have been some of the vivid images that Sheila started to see following her diagnosis of age-related macular degeneration (AMD).
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“I hope Archie will never have to worry about losing his sight”
Posted: Monday 11 November 2024
When Sian was first diagnosed with Best disease, a rare genetic eye condition, she was just a child. She barely remembers the details, only that she got a day off school and visited the Tower of London. Decades later, the condition she had almost forgotten about resurfaced - this time, affecting her young son, Archie.
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“Don’t let the diagnosis rule your life."
Posted: Thursday 17 October 2024
A yoga instructor who has been diagnosed with Stargardt disease has shared how the practice has helped her cope with the condition after she was left feeing “completely alone”.
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“Contacting the Macular Society was the best thing I ever did”
Posted: Friday 27 September 2024
Being diagnosed with wet age-related macular degeneration (AMD) left Libby feeling “trapped” and scared about her future. But, reaching out for support not only eased her fears, it also transformed her outlook on life with a visual impairment.
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"I can now look forward to the future with a degree of hope and confidence"
Posted: Wednesday 4 September 2024
In the aftermath of his macular diagnosis, Simon was left feeling fearful and full of anxiety. But a year after receiving the devastating news that he had central retinal vein occlusion (CRVO), the 63-year-old tells us how he has managed to come to terms with his condition.
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“The most thrilling thing I have ever done”
Posted: Wednesday 28 August 2024
Turning 71 became an unforgettable milestone for retired teacher Janet as she plummeted from 12,000 feet, all to raise awareness and funds for macular disease.
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Ex BBC journalist with AMD launches podcast
Posted: Monday 29 July 2024
A new podcast has been launched by Macular Society member and former BBC journalist Angela Young, who was diagnosed with macular disease at 56.
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"Without the Macular Society, I don’t know what we would’ve done"
Posted: Wednesday 24 July 2024
When Sue’s husband Peter was diagnosed with dry age-related macular degeneration (AMD), it wasn’t just his life that changed – it was hers too.
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