Latest news
Ann, 99, completes milestone walking marathon challenge
Posted: Thursday 24 August 2023
While we have seen our fair share of rain over the last few months, nothing could stand in the way of 99-year-old Ann who has completed her mammoth, walking marathon challenge.
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Thrill seeker skydives from 14,000ft to Beat Macular Disease
Posted: Friday 18 August 2023
Thrill-seeker Jade can tick off a 14,000ft skydive from her adrenaline-fuelled bucket list after she fearlessly threw herself out of a plane, to beat macular disease.
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“It’s not about what you can’t do, but what you can do that matters”
Posted: Monday 17 July 2023
From working as a volunteer football coach at one of the Premier League’s top clubs to advising ministers at the heart of Government, Jonathan has never let Stargardt get in the way of his varied career.
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"It's valuable to come together with people who understand what it is like"
Posted: Tuesday 27 June 2023
People living with punctate inner choroidopathy (PIC) will now benefit from a new condition-specific support group which has launched online.
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“Sight loss does change your life, but it's not the end of your life”
Posted: Tuesday 27 June 2023
Receiving a diagnosis of macular disease can be overwhelming and bring about a whirlwind of emotions. But, with the right advice and support it is possible to overcome the emotional impact and continue to do the things you love.
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“As a mother, it’s one of the hardest things to face”
Posted: Monday 19 June 2023
Ten-year-old Freddie was diagnosed with Stargardt - a rare form of macular disease last year, after teachers initially shared their concerns with his mum Stacy.
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“The only skill you need is empathy”
Posted: Thursday 1 June 2023
A former ophthalmic nurse has spoken of her rewarding new role as a volunteer group leader for the Macular Society and the difference she’s making to people with macular degeneration.
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"It doesn’t matter how much I can see, it’s just about being able to compete"
Posted: Tuesday 16 May 2023
From pulling tractors weighing three tonnes, to throwing heavy barrels, 31-year-old Matt does not let his sight loss stand in his way as he continues to push the limits of human endurance.
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Warhammer fundraiser to raise awareness of macular disease
Posted: Friday 14 April 2023
A twelve-year-old Warhammer fanatic is organising a fundraising tournament in memory of his beloved late grandad, to raise awareness of macular disease and support others with the condition, after seeing the impact it had on his life.
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‘Inspirational’ Ann, 99, sets out to complete marathon walking challenge
Posted: Wednesday 5 April 2023
An inspirational 99-year-old is celebrating her milestone year by walking the equivalent distance of a marathon around her local running track in a bid to help beat macular disease.
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Treatment delays – “It’s vitally important to speak out”
Posted: Wednesday 5 April 2023
Stories of delays to vital treatment for age-related macular degeneration (AMD) have been hitting the headlines over the last few weeks. While the news is concerning for many people affected, Pam, who was diagnosed with wet AMD in 2021, has shared why she has spoken out about her own experiences to the national press and why she would encourage others to do the same.
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“I wanted to do something to challenge myself”
Posted: Friday 31 March 2023
A grandmother of four with age-related macular degeneration (AMD) will be taking on her first-ever marathon this month, at the age of 70.
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