Latest news
“As a mother, it’s one of the hardest things to face”
Posted: Monday 19 June 2023
Ten-year-old Freddie was diagnosed with Stargardt - a rare form of macular disease last year, after teachers initially shared their concerns with his mum Stacy.
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“The only skill you need is empathy”
Posted: Thursday 1 June 2023
A former ophthalmic nurse has spoken of her rewarding new role as a volunteer group leader for the Macular Society and the difference she’s making to people with macular degeneration.
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"It doesn’t matter how much I can see, it’s just about being able to compete"
Posted: Tuesday 16 May 2023
From pulling tractors weighing three tonnes, to throwing heavy barrels, 31-year-old Matt does not let his sight loss stand in his way as he continues to push the limits of human endurance.
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Warhammer fundraiser to raise awareness of macular disease
Posted: Friday 14 April 2023
A twelve-year-old Warhammer fanatic is organising a fundraising tournament in memory of his beloved late grandad, to raise awareness of macular disease and support others with the condition, after seeing the impact it had on his life.
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‘Inspirational’ Ann, 99, sets out to complete marathon walking challenge
Posted: Wednesday 5 April 2023
An inspirational 99-year-old is celebrating her milestone year by walking the equivalent distance of a marathon around her local running track in a bid to help beat macular disease.
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Treatment delays – “It’s vitally important to speak out”
Posted: Wednesday 5 April 2023
Stories of delays to vital treatment for age-related macular degeneration (AMD) have been hitting the headlines over the last few weeks. While the news is concerning for many people affected, Pam, who was diagnosed with wet AMD in 2021, has shared why she has spoken out about her own experiences to the national press and why she would encourage others to do the same.
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“I wanted to do something to challenge myself”
Posted: Friday 31 March 2023
A grandmother of four with age-related macular degeneration (AMD) will be taking on her first-ever marathon this month, at the age of 70.
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"People don’t consider that there will be a life after diagnosis"
Posted: Wednesday 1 March 2023
Beverley has been a Macular Society counsellor for more than 20 years. In this time she has spoken to hundreds of people struggling to come to terms with the life-changing diagnosis of macular disease.
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“There’s a way around everything if you’re determined”
Posted: Friday 17 February 2023
Keen knitter Audrey has described achieving her proudest piece of work, as she has proved there is no reason to let her sight loss stand in the way of her passion.
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“I noticed when new people joined, they would come with so much fear in their eyes”
Posted: Wednesday 1 February 2023
Vera became a Macular Society group leader a few years after her late husband Peter was diagnosed with age-related macular degeneration (AMD).
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"It's only now that I have seen the impact macular disease has on people"
Posted: Friday 20 January 2023
A retired ophthalmic nurse said it wasn’t until she began to volunteer with her local support group that she realised the true impact of macular disease and the impact it has on many people’s lives.
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“I didn’t know how many people were like me”
Posted: Wednesday 21 December 2022
Like many others who are diagnosed with macular disease, Margaret had no idea what the condition was and how many others were affected but, after experiencing the fear and isolation of her condition first hand, the 79-year-old wanted to help others in need of support.
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