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Latest news
![An illustrative design showing victorian-era women in the middle of a modern street to suggest an hallucination somebody with Charles Bonnet syndrome might experience](/media/wbbdvfo0/victorian-ladies-charles-bonnet-syndrome-cbs.jpg?width=440&height=440&rnd=133512613293300000&quality=40)
'The more that is known about Charles Bonnet syndrome, the better'
Posted: Thursday 1 February 2024
Researchers at Royal Holloway University looking into the effectiveness of different techniques to help manage visual hallucinations are calling for more participants to take part in the first study of its kind.
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![Carol Ozanne smiling into camera](/media/2jpj1xmv/carol-ozanne-photo.jpg?width=440&height=440&rnd=133640454656730000&quality=40)
'Do the things that make you feel worthwhile'
Posted: Wednesday 24 January 2024
The loneliness and isolation associated with sight loss can be detrimental to our mental health, but volunteer Carol is on a mission to emotionally lift and encourage others.
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![Valda Johnston smiling into camera](/media/1shpkled/valda-johnston.jpg?width=440&height=440&rnd=133640454456430000&quality=40)
'I went to help make tea but I stayed for the support'
Posted: Thursday 21 December 2023
For more than a decade Valda volunteered with her local support group, despite her initial doubts of being around others with sight loss.
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![Penny Rome smiling](/media/hzfl3wwu/penny-rome.jpg?width=440&height=440&rnd=133650048644270000&quality=40)
"I didn't know if my hallucinations were a manifestation of my grief"
Posted: Thursday 16 November 2023
Seeing frightening faces in her own home was the reality for Penny, who was trying to come to terms with her sight loss in the aftermath of losing her husband.
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![Geraldine Kelley in garden](/media/4ejbiu3f/geraldine-kelley.jpeg?width=440&height=440&rnd=133644884373200000&quality=40)
“You have to try and remain connected and appreciate what you’ve got”
Posted: Thursday 26 October 2023
With lots going on in her personal life in 2017 Geraldine admits she had little time to process the news that she had the early stages of age-related macular degeneration (AMD).
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![Irene walking outside with stick](/media/qf2hz5n0/irene1.jpg?width=440&height=440&rnd=133650048520130000&quality=40)
“My white cane is absolutely essential – I wouldn’t be without it”
Posted: Friday 13 October 2023
When Julia and Irene step out of their front doors, they do so with an air of confidence - and it’s all thanks to their white canes.
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![Nick Lancaster smiling in hat and sun glasses. The National Lottery Community Fund Wales logo bottom right.](/media/0k5jzfyi/nick-lancaster-2.jpg?width=440&height=440&rnd=133651641332630000&quality=40)
“I’ve learned all the skills that I need to try and live independently”
Posted: Wednesday 20 September 2023
When Macular Society volunteer Nick suddenly found himself unable to make a simple cup of tea, he knew he needed help to rediscover an independent life with sight loss.
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![Ann Johnson with walker and Challenge t-shirt](/media/u3oezjqq/ann-johnson.jpg?width=440&height=440&rnd=133650026238330000&quality=40)
Ann, 99, completes milestone walking marathon challenge
Posted: Thursday 24 August 2023
While we have seen our fair share of rain over the last few months, nothing could stand in the way of 99-year-old Ann who has completed her mammoth, walking marathon challenge.
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![Jade Blackledge mid sky dive](/media/lxhpyegx/jade-blackledge.jpg?width=440&height=440&rnd=133644883586230000&quality=40)
Thrill seeker skydives from 14,000ft to Beat Macular Disease
Posted: Friday 18 August 2023
Thrill-seeker Jade can tick off a 14,000ft skydive from her adrenaline-fuelled bucket list after she fearlessly threw herself out of a plane, to beat macular disease.
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![Jonathan Tear headshot](/media/ppibpfym/jonathan-tear.jpg?width=440&height=440&rnd=133650024831870000&quality=40)
“It’s not about what you can’t do, but what you can do that matters”
Posted: Monday 17 July 2023
From working as a volunteer football coach at one of the Premier League’s top clubs to advising ministers at the heart of Government, Jonathan has never let Stargardt get in the way of his varied career.
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![Jane Tidy laughing](/media/crmfw34l/jane-tidy.jpg?width=440&height=440&rnd=133650024649870000&quality=40)
"It's valuable to come together with people who understand what it is like"
Posted: Tuesday 27 June 2023
People living with punctate inner choroidopathy (PIC) will now benefit from a new condition-specific support group which has launched online.
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![Louise smiling at the camera in the woods holding a cane](/media/blde323o/louise2.png?width=440&height=440&rnd=133639767405130000&quality=40)
“Sight loss does change your life, but it's not the end of your life”
Posted: Tuesday 27 June 2023
Receiving a diagnosis of macular disease can be overwhelming and bring about a whirlwind of emotions. But, with the right advice and support it is possible to overcome the emotional impact and continue to do the things you love.
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