Latest news
"I can now look forward to the future with a degree of hope and confidence"
Posted: Wednesday 4 September 2024
In the aftermath of his macular diagnosis, Simon was left feeling fearful and full of anxiety. But a year after receiving the devastating news that he had central retinal vein occlusion (CRVO), the 63-year-old tells us how he has managed to come to terms with his condition.
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“The most thrilling thing I have ever done”
Posted: Wednesday 28 August 2024
Turning 71 became an unforgettable milestone for retired teacher Janet as she plummeted from 12,000 feet, all to raise awareness and funds for macular disease.
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Ex BBC journalist with AMD launches podcast
Posted: Monday 29 July 2024
A new podcast has been launched by Macular Society member and former BBC journalist Angela Young, who was diagnosed with macular disease at 56.
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"Without the Macular Society, I don’t know what we would’ve done"
Posted: Wednesday 24 July 2024
When Sue’s husband Peter was diagnosed with dry age-related macular degeneration (AMD), it wasn’t just his life that changed – it was hers too.
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“We can support each other and that has been quite marvellous”
Posted: Wednesday 17 July 2024
Two women who joined a global online support group for people with an extremely rare form of macular disease have formed a friendship after discovering they lived just a few miles apart.
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"I want to help create awareness of macular disease first and foremost"
Posted: Thursday 4 July 2024
Rosey, a 67-year-old fitness instructor, turned her exercise classes into a tribute to those living with macular disease as she set the routines to vision-themed music and asked everyone to wear yellow for Macular Week.
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“Talking to people who knew what macular was, I knew I wasn’t alone"
Posted: Tuesday 2 July 2024
When Peter was told he had macular degeneration, he found himself overwhelmed with uncertainty and fear. The rapid deterioration of his sight was far worse than he had imagined, and the lack of information and support he received left him feeling ‘abandoned’.
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"I know my eyesight will change, so I want to live in the here and now"
Posted: Monday 24 June 2024
Nancy assumed her vision changes were just part of getting older. When she noticed blank spots and disappearing words while reading, she thought she needed a new prescription.
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"Volunteering is very fulfilling and it keeps your brain and body active”
Posted: Monday 3 June 2024
When Tricia was diagnosed with macular disease, she already had a support system in place, thanks to her role as a volunteer with her local support group.
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'It's very important that I make the best of what I can see and do now'
Posted: Thursday 25 April 2024
John has been creative for as long as he can remember, and is determined to keep doing what he loves, while adjusting to life with sight loss.
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‘I didn’t appreciate the longer-term emotional impact of this disease’
Posted: Wednesday 20 March 2024
Jill, a university researcher from County Durham, described how the Macular Society’s Counselling Service gave her the “time and breathing space” to adapt after a diagnosis of an extremely rare form of macular disease.
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'Talking about it is an opportunity to help people understand more about sight loss'
Posted: Thursday 29 February 2024
Leah's journey with Best disease started when she was growing up with her brother Finn, who has the condition. But, even though she knew what it was, her own eyesight was not affected.
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