Latest news
Charles Bonnet Syndrome Awareness Day 2024: Your experiences
Posted: Saturday 16 November 2024
Imagine spotting angels perched in trees, an infestation of flies, or even a familiar face from your past appearing in your living room.
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"I see the floating heads of toothless, grinning medieval men"
Posted: Saturday 16 November 2024
Visions of medieval figures with open mouths and toothless grins have been some of the vivid images that Sheila started to see following her diagnosis of age-related macular degeneration (AMD).
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“I hope Archie will never have to worry about losing his sight”
Posted: Monday 11 November 2024
When Sian was first diagnosed with Best disease, a rare genetic eye condition, she was just a child. She barely remembers the details, only that she got a day off school and visited the Tower of London. Decades later, the condition she had almost forgotten about resurfaced - this time, affecting her young son, Archie.
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First UK hearing and sight loss survey launched
Posted: Thursday 7 November 2024
The first survey in the UK to collect data on vision and hearing loss has been launched. The UK National Eye Health and Hearing Study, aims to record data to inform the NHS and policymakers and is a collaboration between sensory loss charities, Anglia Ruskin University, eye and hearing care professionals and the public sector.
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NICE recommends new treatment for wet AMD
Posted: Tuesday 5 November 2024
A new treatment option for patients with wet age-related macular degeneration (AMD) is set to become available on the NHS in England.
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“Fundraising for research is a really integral part of what we should be doing”
Posted: Wednesday 23 October 2024
The Newmedica team swapped the clinic for the great outdoors, battling the dark, wind and rain in their efforts to raise vital funds for research to find a cure.
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“Don’t let the diagnosis rule your life."
Posted: Thursday 17 October 2024
A yoga instructor who has been diagnosed with Stargardt disease has shared how the practice has helped her cope with the condition after she was left feeing “completely alone”.
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Half of UK adults expect vision loss within a decade, yet many skipping eye tests
Posted: Thursday 17 October 2024
A recent survey of over 2,000 UK adults found that half of people expect to experience some form of sight loss within the next decade, yet more than a quarter do not have regular eye tests.
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World Sight Day: Myopia becoming a major global issue
Posted: Thursday 10 October 2024
Myopia, also known as short sightedness, is becoming a major global issue with new research showing one in three children is affected. In a recent My Macular and Me webinar Dr Annegret Dahlmann-Noor, called for increased awareness and research investment in MMD, which she called an "increasingly common problem."
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“I wanted to feel like Stargardt didn’t hold me back”
Posted: Thursday 3 October 2024
Macular Society patron and sprinter Zac Shaw has opened up about his inspiring experience at the Paris 2024 Paralympics, where he secured two medals – one silver and one bronze.
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“Contacting the Macular Society was the best thing I ever did”
Posted: Friday 27 September 2024
Being diagnosed with wet age-related macular degeneration (AMD) left Libby feeling “trapped” and scared about her future. But, reaching out for support not only eased her fears, it also transformed her outlook on life with a visual impairment.
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Diet and nutrition - your questions answered
Posted: Thursday 26 September 2024
Can diet and lifestyle choices such as cutting alcohol or taking supplements slow the progression of macular disease? At the Macular Disease Conference 2024, Professor Ruth Hogg shared her insights on the powerful role of diet and lifestyle on eye health.
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